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Children Affected by Inconsistant Seizures Foundation

Aubrey's Story

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      Aubrey was first diagnosed with a rare seizure disorder called Infantile Spasms, also known as West Syndrome.  In most cases the symptoms of this disorder begin around the age of four to six months of age.  The seizures primarily consist of a sudden bending forward of the body with stiffening of the arms and legs; some children arch their backs as they extend their arms and legs. Spasms tend to occur upon awakening or after feeding, and often occur in clusters of up to 100 spasms at a time. Infants may have dozens of clusters and several hundred spasms per day. Infantile spasms usually stop by age five, but may be replaced by other seizure types. Many underlying disorders, such as birth injury, metabolic disorders, and genetic disorders can give rise to spasms, making it important to identify the underlying cause. In some children, no cause can be found.
 
     In Aubrey's case, she is now three years old and is still suffering from multiple cluster of seizures everyday.  Once Aubrey was diagnosed with IS she was started on a high cose steroid called

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